Most-Popular Articles

Medical Terminology – A Whole New Language

“Most of the time, I don’t understand what the doctors are talking about. They talk so fast and use so many words and phrases that I don’t know the meaning of ; how am I supposed to make sense of all of this if we are not speaking the same language?” HISTORY AND PHYSICAL (H+P): » Read More



Helping When Your Child is in Pain

“I cannot bear to see my child in pain, and I feel so helpless. What can I do to support her? How can I support her and not fall apart myself?” As a parent, you want to protect you children from everything that can harm them. You teach them not to talk to strangers. You » Read More



Stress on Marriage and Relationships

“With the stress from our child’s diagnosis, our marriage is suffering. There is so much pressure on both of us, I am afraid the whole thing is tearing us apart. Is this normal?” Parents of children with special needs (such as health, emotional, or behavioral conditions) often experience a complex array of feelings, including sadness, » Read More



What Do I Tell My Child?

“I don’t know when the best time is to talk to my child about some of things I know we need to discuss. I want to make sure she isn’t wondering about something and is having a hard time asking about it.” Talking with your child about the illness and treatment Right about now you » Read More



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Talking to Your Child’s Doctor

“I have an appointment tomorrow to talk with the pediatrician about my daughter’s condition. I am afraid I won’t be able to take in all of the information. I am feeling so emotional, sometimes what the doctor says is so hard to hear that I just can’t take it all in.” It’s 3:00 o’clock in » Read More



Preparing for a Crisis

“How do I prepare for a crisis or life-threatening situation?” There will be a time, if it hasn’t come already, when you and your child’s doctor will need to talk about and decide on the intensity of care that you would choose if your child faces a crisis or life-threatening situation.   This is an » Read More



Helping When Your Child is in Pain

“I cannot bear to see my child in pain, and I feel so helpless. What can I do to support her? How can I support her and not fall apart myself?” As a parent, you want to protect you children from everything that can harm them. You teach them not to talk to strangers. You » Read More



Insurance Issues

“I was told that this disease is considered a preexisting condition by our insurance company. Will my child be insurable in the future?” Your child’s diagnosis will determine their insurability. In general, many children with serious illnesses will not be able to get insurance on an individual basis. Organ transplants, leukemia, lymphomas, cystic fibrosis, and » Read More



Trouble with Sleep

“Since treatment started, my daughter is afraid to go to sleep without me. We are both exhausted and cranky. I don’t think I can cope with all of this on two hours of sleep and if I don’t get some sleep soon, I am going to lose it!” Our minds, bodies and spirits need rest. » Read More



Grandparents

“I am having trouble dealing with my mother’s sadness and fear for my child. I know my child’s grandparents feel powerless, but I don’t have the strength right now to handle their anxiety on top of my own.” Grandparents hold a particularly special place in the lives of our children. The relationships you have with » Read More



My Child Won’t Eat!

“My child just started treatment and she never feels like eating anything. I know nutrition is really important now and I feel frustrated and helpless when I can’t get her to eat.” It can be challenging to get your child to eat well when they are dealing with a new diagnosis, medication changes, treatments, testing » Read More



Getting the Help You Really Need

“Everybody wants to help. I know it sounds crazy but sometimes it’s overwhelming and I don’t feel comfortable asking for what I really do need.” Most of us aren’t very good at asking for help when we need it. We’re used to being able to take care of our families on our own. And though » Read More



Your Child’s Pain

“My child just started treatment. I am worried about all of the painful tests and treatments he will have to endure and I want to know what I can do to help him.” No matter how old your child is, when they feel pain, you feel it too. Unfortunately, there will be episodes of discomfort » Read More



Fighting the Disease

“We’re all finding it hard to stay strong given the obstacles we’re facing and the way all of our lives have changed since our child’s illness was diagnosed.” The fight of your life is now in front of you. The enemy or obstacle is a medical illness that has changed the fabric of your life » Read More